A month ago, I had one of those big nights you remember forever. I’ve felt nervous writing my recap blog—I wanted to do it justice—but I realized I’ve worked myself into so much of a tizzy that I haven’t written anything at all now because I’m in a writing paralysis. (Isn’t it fun being perpetually… Continue reading That time I went to a Joint Session of Congress
Tag: POTS
Sorry I didn’t answer your question
I’m a rambler when I’m nervous. And when I’m not nervous. When I’m perfectly fine, when I’m happy, when I’m angry, when I’m every emotion, I usually talk. When someone gives me a question I don’t have a good answer to or don’t want to answer, I still answer. I’ll give them an answer to… Continue reading Sorry I didn’t answer your question
It gets better with time
Seven years ago today, at the age of 16, I had a major POTS episode. But at the time, I didn’t know it was a POTS episode. I was undiagnosed and blamed the whole event on myself, my interpretation of my own laziness, my inability to take care of my body. My heart rate was… Continue reading It gets better with time
It’s happening
In one of my all time favorite pieces of The Colbert Report, Stephen goes on a journey to sell his portrait for megabucks at a New York art gallery. He goes the whole nine yards—he has it appraised by several art appraisers, he learns all about the art scene from the art curator Simon de… Continue reading It’s happening
30 Things
Along with it being Dysautonomia Awareness Month, it’s also the middle of Invisible Illness Week. Invisible Illness Week has a fabulous meme, 30 Things About My Invisible Illness You May Not Know. And because I miss the days of MySpace and Facebook surveys, I filled it out focusing on dysautonomia, despite having what feels like… Continue reading 30 Things