Resources

Not every one of these resources applies directly to coping with dysautonomia, but every resource here has been beneficial to me or to a friend or family member.

Are you newly diagnosed to dysautonomia? Check out my Starter Kit which breaks down some resources step by step!

Information about dysautonomia

Blogs & Websites

Social media accounts

Facebook support groups

Doctor finders and databases

Some of my favorite posts and articles

Apps and tools

  • Flowly – VR biofeedback at home using your own phone
  • Folio – this app lets you store bank cards and scan all kinds of important cards and documents, so when you forget your wallet or are missing something, all you have to do is open your app. I use this to store my insurance cards, COVID vaccine cards, and other health documents so I always have them with me
  • Heartmath – biofeedback at home
  • Migraine Buddy – log migraines and track barometric pressure changes
  • Monash University Low FODMAP App – costs $13, but is such a good resource if you’re on a low FODMAP diet–makes everything easy to understand and search
  • Supercook – recipe search by what ingredients you have at home
  • VacayAbility – imagine Yelp where every review is written by your chronically ill and disabled friends. An invaluable resource created by Natasha Graves.
  • WeatherX – app and ear plugs to help with barometric pressure changes. I only use the app to track pressure changes and it is fantastic.

Books

Movies and videos

Shops that support dysautonomia research and great products for dysautonomia

Hydration Supplements

I’ve listed as many as I can possibly find–I’ve left notes about my presonal favorites, the ones that are easy to find, etc.

  • Buoy – this one is drops instead of a powder
  • DripDrop – easy to find at drug stores
  • LMNT – has the most unique flavors I’ve ever seen
  • LiquidIV – you can find good deals on Amazon, CostCo, and they frequently do sponsorships of influencers and YouTube channels and will offer discount codes
  • NormaLyte – they have products beyond powders which is great. The flavors aren’t my favorite but they have a non-flavored powder which is kind of cool that I would recommend mixing with something that you do like, like Crystal Lite
  • nuun – you can find this at Target
  • Pedialyte – it’s a classic for a reason
  • Vitassium and SaltStick – my absolute favorite, not just because the team is great. It has the best flavor balance, and I really like the Pink Lemonade. They also have chewables and salt pills.

Products My Friends & I Like