Tag: dysautonomia

Shannon’s Favorite Things 2020

Merry Christmas, Happy Hanukkah, Happy Kwanzaa, Happy Solstice, Happy every single winter holiday that occurs this season! And most of all, happy sales and free shipping! About a month ago I had really big and grandiose plans for another installment of my dysautonomia inspired gift guide—I had plans to work on it over Thanksgiving and… Continue reading Shannon’s Favorite Things 2020

What a month

It’s been crazy. I’ve always loved the fall. It’s just a superior season to everything else, because I can finally break out my jeans and hoodies and large assortment of hats. And stop shaving my legs. It’s a good time to be a human being. Sure, season changes mean major pain for POTSies and patients… Continue reading What a month

#DysConf 2018: Raising dysautonomia awareness in Nashville

NASHVILLE. MUSIC CITY. LAND OF HOT CHICKEN, BACHELORETTE PARTIES, AND TAYLOR SWIFT. (She does own like 10% of the city at this point, right? At least that’s what I’m lead to believe.) And also home to this year’s Dysautonomia International patient, caregiver and physician conference! For the first time ever, we ventured away from our usual… Continue reading #DysConf 2018: Raising dysautonomia awareness in Nashville

I’m five years into diagnosis, and it’s only the beginning

Some people have a very distinct “sickaversary.” Others have a given “diagnosaversary.” I have neither. Developing dysautonomia was a slow burn, it developed just as my body did from pre-pubescence into adulthood. And getting my diagnosis was a long, jumbled path. There was a distinct day my psychiatrist said, “I think you have POTS”—but keep… Continue reading I’m five years into diagnosis, and it’s only the beginning