Given the fact that my favorite thing in the world is just sitting and talking or sleeping, it doesn’t make much sense that the highlight of my year is a four day conference that I spend the majority of each day on my feet, running around, making things happen. I *do* spend plenty of time… Continue reading #DysConf 2017: recap, highlights and how I managed four days of going, going, going
Historically, #DysConf Lobby Days have been on the hottest days of the year. This year, at with a high of 91 degrees, it was actually the coolest Lobby Day we’d had so far… and let’s just say I FELT every single one of those degrees. We arrived downtown later than we’d planned and booked it… Continue reading #DysConf 2017: recap, Lobby Day in a Lobby Daze
HEY FRIENDS. There are a few unchanging truths about me as a human being: I love Stephen Colbert Yes, I want to see a picture of your golden retriever puppy, did you really have to ask? I hate exercise Here’s the catch about me and exercise, though: I’ll do it for a good reason. Usually,… Continue reading I’m doing what I hate… for charity!!!
I’ve been a volunteer with Dysautonomia International since 2014 and the biggest part of our year is the annual patient conference. This is my fourth year attending the conference (four for four!) and the third year as a volunteer. I am as excited as ever because this year has some really exciting things in store.… Continue reading What to bring to #DysConf
LET’S DO THIS. Dysautonomia International knows how to party. They know that #GivingTuesday is the best, and want to make it last every day of December. I used to think of charity in the abstract. I participated in service projects, I bought wristbands, I practiced my vocab to donate grains of rice. I gave $5… Continue reading #GivingTuesday