Happy Rare Disease Week! This is a tremendously important week to focus on advocating for recognition of rare diseases and the people who live with them, raising awareness of how common they are and how many people live with them, and teaching the public what needs to be done in the research community to eradicate… Continue reading What I need you to understand about POTS and rare diseases
Tag: rare disease
Why I’m very suddenly excited about health policy legislation
This is Shira Strongin. She runs the blog and community The Sick Chicks which is pretty great and you should head over there sometime soon if you aren’t already familiar. We met this year at the Dysautonomia International Conference and became prettttty good friends and the fact that we weren’t best friends until now is… Continue reading Why I’m very suddenly excited about health policy legislation