It’s been crazy. I’ve always loved the fall. It’s just a superior season to everything else, because I can finally break out my jeans and hoodies and large assortment of hats. And stop shaving my legs. It’s a good time to be a human being. Sure, season changes mean major pain for POTSies and patients… Continue reading What a month
Some people have a very distinct “sickaversary.” Others have a given “diagnosaversary.” I have neither. Developing dysautonomia was a slow burn, it developed just as my body did from pre-pubescence into adulthood. And getting my diagnosis was a long, jumbled path. There was a distinct day my psychiatrist said, “I think you have POTS”—but keep… Continue reading I’m five years into diagnosis, and it’s only the beginning
Happy Rare Disease Week! This is a tremendously important week to focus on advocating for recognition of rare diseases and the people who live with them, raising awareness of how common they are and how many people live with them, and teaching the public what needs to be done in the research community to eradicate… Continue reading What I need you to understand about POTS and rare diseases
HEY FRIENDS. There are a few unchanging truths about me as a human being: I love Stephen Colbert Yes, I want to see a picture of your golden retriever puppy, did you really have to ask? I hate exercise Here’s the catch about me and exercise, though: I’ll do it for a good reason. Usually,… Continue reading I’m doing what I hate… for charity!!!
Last April I went to the mountains (well, the valleys) of Utah, where I spent my childhood summers for some R & R with family. And then I got violently ill. * I went to Utah to recharge. I started up Round 2 of TMS last October and even though things were going well in… Continue reading I went to the mountains