Resources

Some of my favorite posts & articles

• Harder than MIT: Living with postural orthostatic tachycardia syndrome (via The Tech/Sarah Mendelowitz)
• How to be comfortable & safe in the hospital (via POTSgrrl/Lauren Stiles)
• How to appeal a health insurance denial (via The Wall Street Journal Guides)
• How to talk to your practitioners about your physical pain (via Illness to Wellness)
• On wasting my time – The numbers (via Jess Jacobs)
• Please pass the salt (via Dysautonomia International Blog)
• POTS Clinical Pathway (via Children’s Hospital of Philadelphia) — this is an excellent resource!
• Principles of Autonomic Medicine by Dr. David Goldstein (via Dysautonomia International)
• This is what it’s like to try and get diagnosed with an invisible illness (via BuzzFeed)

Non-Dysautonomia (& General) Resource Posts

• Ehlers-Danlos Syndrome massive list (via spoonsandstripes)
• Disabled people are not an inconvenience (via Harper’s Bazaar)
• Quick and dirty guide to picking a therapist (via Emily V Gordon)
• The Spoon Theory (via But You Don’t Look Sick)
• Supercook: recipe search by what ingredients you have at home
• You Feel Like Sh*t: An Interactive Self-Care Guide
• 8 things to remember when you feel broken inside (via Power of Positivity) – my therapist sent this to me in a time of need and #7 really resonated with me

Blogs

• The Dysautonomia Dispatch (Dysautonomia International’s blog)
• Living with Bob (Dysautonomia)
• POTSgrrl (no longer updated, but still full of great info)
• The Sick Chicks (general chronic illness female rockstar positivity led by the outstanding Shira Strongin)
• With a Side of Salt: POTS Support

Facebook Support Groups

• Teens with Dysautonomia (ages 13-18)
• POTS (all ages)
• POTS in College

Shop to support Dysautonomia research

• Bravelets
• Fighter Wear
• smile.amazon.com (choose Dysautonomia International!)

Websites

• Dysautonomia International
• Dysautonomia Information Network
• Ehlers-Danlos National Foundation
• Vanderbilt Autonomic Dysfunction Center