Resources

Blogs

The Dysautonomia Dispatch (Dysautonomia International’s blog)
Living with Bob (Dysautonomia)
POTSgrrl (no longer updated, but still full of great info)
The Sick Chicks (general chronic illness female rockstar positivity led by the outstanding Shira Strongin)
With a Side of Salt: POTS Support

Facebook Support Groups

Teens with Dysautonomia (ages 13-18)
POTS (all ages)
POTS in College

Select products for dysautonomia

Tramps Hosiery

Stores that donate to dysautonomia

Bravelets
Fighter Wear
smile.amazon.com (choose Dysautonomia International!)

Websites

Some of my favorite posts & articles

Ehlers-Danlos Syndrome massive list (via spoonsandstripes)
Disabled people are not an inconvenience (via Harper’s Bazaar)
Harder than MIT: Living with postural orthostatic tachycardia syndrome (via The Tech/Sarah Mendelowitz)
How to be comfortable & safe in the hospital (via POTSgrrl/Lauren Stiles)
How to find the right therapist (via The New York Times)
How to appeal a health insurance denial (via The Wall Street Journal Guides)
How to talk to your practitioners about your physical pain (via Illness to Wellness)
On wasting my time – The numbers (via Jess Jacobs)
Please pass the salt (via Dysautonomia International Blog)
POTS Clinical Pathway (via Children’s Hospital of Philadelphia) — this is an excellent resource!
Principles of Autonomic Medicine by Dr. David Goldstein (via Dysautonomia International)
The Spoon Theory (via But You Don’t Look Sick)
Supercook: recipe search by what ingredients you have at home
Quick and dirty guide to picking a therapist (via Emily V Gordon)
This is what it’s like to try and get diagnosed with an invisible illness (via BuzzFeed)
You Feel Like Sh*t: An Interactive Self-Care Guide
8 things to remember when you feel broken inside (via Power of Positivity) – my therapist sent this to me in a time of need and #7 really resonated with me