#DysConf 2018: Raising dysautonomia awareness in Nashville

NASHVILLE. MUSIC CITY. LAND OF HOT CHICKEN, BACHELORETTE PARTIES, AND TAYLOR SWIFT. (She does own like 10% of the city at this point, right? At least that’s what I’m lead to believe.) And also home to this year’s Dysautonomia International patient, caregiver and physician conference! For the first time ever, we ventured away from our usual… Continue reading #DysConf 2018: Raising dysautonomia awareness in Nashville

I’m five years into diagnosis, and it’s only the beginning

Some people have a very distinct “sickaversary.” Others have a given “diagnosaversary.” I have neither. Developing dysautonomia was a slow burn, it developed just as my body did from pre-pubescence into adulthood. And getting my diagnosis was a long, jumbled path. There was a distinct day my psychiatrist said, “I think you have POTS”—but keep… Continue reading I’m five years into diagnosis, and it’s only the beginning

I don’t know what changed in me, but it’s something big

CW/TW: mentions of suicidal ideation My depression has a set pattern: I’m well. Something trips up. I start to fall, fall, fall. I crash hard. I pull myself together. I get up. I get stronger, better, happier. I’m well again. I’ve done this a hundred times in my 25 years. I’m an expert. But when… Continue reading I don’t know what changed in me, but it’s something big

I’m going for the title of World’s Worst Patient

having a grand, ol' time

I don’t want to go to my cardiologist. I can’t remember the last time I saw him. It’s nothing personal. The farthest thing from it, really. He’s lovely. So is his wife who is another doctor at his practice. They’re kind, spend a lot of time on their patients, and they know what they’re doing.… Continue reading I’m going for the title of World’s Worst Patient

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