I got in a fight with my parents two nights ago. (Mostly with my mom–she was the one I yelled at. She yelled back. And I was the one who stormed off, ignoring her apology and plea for me to come back.) When I turned 26, my dad signed me up for COBRA so I… Continue reading My day without health care
What a month
It’s been crazy. I’ve always loved the fall. It’s just a superior season to everything else, because I can finally break out my jeans and hoodies and large assortment of hats. And stop shaving my legs. It’s a good time to be a human being. Sure, season changes mean major pain for POTSies and patients… Continue reading What a month
Refills and phone calls
I’ve been trying to get my Hyoscyamine refilled since Thursday. I went to the pharmacy because I was all out and asked for an emergency supply while they called my doctor. Today, I called the pharmacy to ask if they’d heard back from my doctor. They hadn’t. I called my doctor. They were on lunch… Continue reading Refills and phone calls
Twenty-six
I’ve written this a hundred times and I can’t seem to get it right. So I’ll just say the one thing that feels right: I didn’t think I’d make it here. 26 wasn’t a sure thing in my mind last year, because the dysautonomia and depression were too much last Fall. I couldn’t deal anymore.… Continue reading Twenty-six
Get your shirts!
Last June I made myself my dream POTS shirt and wore it to the Dysautonomia International Conference. It turned out to be super popular and I had tons of people asking to buy one, so I’m launching a fundraiser through Custom Ink so you all can buy one and benefit Dysautonomia International! Click here for… Continue reading Get your shirts!