Some people have a very distinct “sickaversary.” Others have a given “diagnosaversary.” I have neither. Developing dysautonomia was a slow burn, it developed just as my body did from pre-pubescence into adulthood. And getting my diagnosis was a long, jumbled path. There was a distinct day my psychiatrist said, “I think you have POTS”—but keep… Continue reading I’m five years into diagnosis, and it’s only the beginning
Category: Posts
I don’t know what changed in me, but it’s something big
CW/TW: mentions of suicidal ideation My depression has a set pattern: I’m well. Something trips up. I start to fall, fall, fall. I crash hard. I pull myself together. I get up. I get stronger, better, happier. I’m well again. I’ve done this a hundred times in my 25 years. I’m an expert. But when… Continue reading I don’t know what changed in me, but it’s something big
An FAQ on TMS and other acronyms
Two years ago, I told you about my experience with TMS, Transcranial Magnetic Stimulation. I told you how it pulled me out of depression like nothing I’d ever experienced before. How I relapsed, but I was waiting on insurance to approve another round. Since then, a lot has changed. In the Fall of 2016, I… Continue reading An FAQ on TMS and other acronyms
I’m going for the title of World’s Worst Patient
I don’t want to go to my cardiologist. I can’t remember the last time I saw him. It’s nothing personal. The farthest thing from it, really. He’s lovely. So is his wife who is another doctor at his practice. They’re kind, spend a lot of time on their patients, and they know what they’re doing.… Continue reading I’m going for the title of World’s Worst Patient
What I need you to understand about POTS and rare diseases
Happy Rare Disease Week! This is a tremendously important week to focus on advocating for recognition of rare diseases and the people who live with them, raising awareness of how common they are and how many people live with them, and teaching the public what needs to be done in the research community to eradicate… Continue reading What I need you to understand about POTS and rare diseases